I have received a lot of emails and calls about my most recent post “My Best Friend.…” I seem to have hit on a topic many of our partners have needed to hear about. Clearly, the loss of companionship Parkinson’s brings for the partner is one of the least discussed aspects of the disease.
Posts tagged “Blog”
My Best Friend Has Gone Away and Isn't Coming Back
If you have Parkinson’s disease and are in a marriage or long-term relationship, I am going to tell you something your partner may have been hesitant to say. The greatest challenge for a partner is not the disease itself. Rather, it is the chronic and progressive loss of companionship.
There has been a lot of discussion about a “Parkinson’s Personality” over the years. Although controversial, some researchers have attempted to go back into the past to search for a common set of personality traits among people who later develop PD.
Everybody who is diagnosed with Parkinson’s early in life, while still working, is ultimately faced with the problem of what to do about the impact of this chronic disease on job performance. It is inevitable that any number of disease symptoms will alter how one functions in the workplace. How one responds to these changes in job performance can make all the difference between having some control over one’s future vs. having one’s future defined by someone else. In dealing with any problem in life, it is better to respond than to react.
As of this moment, there is no research supporting any preventive measures a person can take to ward off PD-related cognitive changes. That does not mean that there is nothing out there, only that we don’t have data to support any specific measures.
April is Parkinson’s Awareness Month. This means that the concerted efforts of the PD community will be directed at raising the profile of the disease in an effort to raise funds. As a personal coach, I like to stress that awareness begins with self-reflection. This post discusses a few aspects of PD, of which folks with young-onset should be aware. They are written in no particular order of importance.
As part of my coaching practice, I like to have clients take a look at what aspects of their lives are demanding energy from them. Parkinson’s obviously puts quite a burden on a person but it is very helpful to see what other areas of that person’s life are also taking life energy from them. When a person is able to identify where their inner resources are being directed, it is much easier to come up with strategies for responding to those problems. When the problems aren’t obvious or remain unidentified, the very human tendency is to react to them, potentially draining internal resources that might be put to better use.
TODAY'S BLOG POST IS INSPIRED BY A READER'S COMMENT ABOUT A POST DR. PAUL WROTE ON NOV. 1, 2012, "ANOTHER MARRIAGE LOST TO PARKINSON'S".
There are several givens when we talk about Parkinsons. It is chronic. It tends to get worse over time. It is unpredictable. It is likely to be some time before medical science learns how to cure it and somewhat longer before it learns how to reverse it. And it can be difficult for another person to live with.
These are the facts you face if you enter into a relationship with a person who has the disease. These are the facts the gentleman with Parkinsons faces, as well.
I was recently asked several times to provide some explanation about the difference between early and non-early onset Parkinson’s disease. This seems a fair question given that I am, at this moment, writing a blog about the former.
My standard answer is that early-onset PD is distinguished by the stage of life at which it occurs. Women and men with early-onset PD are typically still in the portion of their life the great developmental theorist, Eric Erikson, defined as one of generativity. The best way to define this concept is to think in terms of guiding the next generation. Generativity underlies our response to “how do I make my life count?”
I had a chance to Hulu several episodes of Michael J. Fox’s new sit-com this weekend and walked away very impressed with what the show is not. It is not a program in which Parkinson’s disease is a character. It is not a show in which PD drives the plot. And it is not a vehicle for educating the audience about the disease. Rather, this eponymous show that marks the return of a talented veteran actor to the television screen has turned its “nots” into a program folks dealing with PD should give a try.