Blog

The Michael J. Fox Show - What It Is Not

I had a chance to Hulu several episodes of Michael J. Fox’s new sit-com this weekend and walked away very impressed with what the show is not. It is not a program in which Parkinson’s disease is a character. It is not a show in which PD drives the plot. And it is not a vehicle for educating the audience about the disease. Rather, this eponymous show that marks the return of a talented veteran actor to the television screen has turned its “nots” into a program folks dealing with PD should give a try.

Continue Reading »

Anger and PD

I got a lot of response to one of my recent Tweets (@PDpsych):

"The best way to drive away those you love is to project your anger w/PD on them. Helping you cope & taking the heat are not the same thing."

Continue Reading »

What Are Your Prospects for Remembering?

Finding yourself forgetting things you promised the kids or your boss you would do later in the day? Got it on your to do list but still dropping the ball because you forget to check the list? Noticing that you are not taking your medication until your PD screams at you that you missed your scheduled time? Blame it on changes in your prospective memory...

Continue Reading »

Parkinson’s Awareness Month and What PD is Not

April is Parkinson’s Awareness Month. My email is packed with posts urging me to get the word out about Parkinson's and offering me a multitude of ways to do so. “Disease Months” serve an important public relations function and typically do a very good job of disseminating information about what a particular medical condition is. As I have gone through the literature and notices I have received about PD the past few weeks, I notice that this Awareness Month focuses very little on what Parkinson’s is not.

Continue Reading »

When Parkinson’s Steals Your Voice

Unless one is on guard, Parkinson’s disease will steal your voice.

We are all aware that many men and women with PD find that their voices have become softer and more difficult to hear. Some discover that they have greater difficulty forming words clearly. There might be a loss of prosody resulting in speech that is flat, monotonic, and far less able to express underlying emotion. This is the literal loss of voice.

It is important to remember, however, that we also possess a figurative voice. It is the latter that individuals with young onset PD are most vulnerable to losing. This is voice as metaphor for the Self, and its diminishment can be one of the most devastating aspects of the disease.

Continue Reading »

Should I Go On Disability?

Should I go on disability because of my PD?

There is obviously no universal or even best answer to this question. Each individual must come to a conclusion best fitting unique needs and circumstances. However, there are some very common concerns that each person should at least consider during the decision making process.

First, and most obvious, is the issue of standard of living. Disability income is real income but it can never match your current salary. It might be necessary to allow yourself some transition time in order to adjust financial obligations to a reduced income. This may mean selling cars or homes to reduce loan obligations or it may entail a thorough search of local resources to assist individuals on a fixed income. Disability need not mean extreme financial stress if the process is well-planned.

Second, is a disability consideration arising out of a mood disorder or anxiety? Research has begun to show that mental health and quality of life issues account for a great deal of the burden PD brings. Depression and anxiety disorders tend to be the norm rather than the exception for folks with PD. Is it possible that consulting with a mental health professional to treat psychiatric concerns might provide you with a few more years of productivity?

Continue Reading »

Another Marriage Lost to Parkinson’s?

My client is sad but composed. She has tried very hard to make it work out and is apologizing to me for “wasting” my time. My gentle admonition that any struggle to save a marriage stressed by PD was never wasted time brings a shrug. However, we are both aware there has been a shift in the work we have been doing. It is clear that our strategy will now be one of navigating through the shoals of guilt, recrimination, and grief that are inevitable when a couple needs to divorce.

Another marriage shattered by Parkinson’s.

Continue Reading »

Taming the Clognitive Mind

In a recent blog, I discussed “clognition”, a term for that rather vague collection of cognitive symptoms common with Parkinson’s disease. As yet there is no cure for “clognition” but that doesn’t mean it is completely unmanageable. To do so, we need to engage in “human engineering.”

Continue Reading »

Clognition

All the PD books on the market talk about changes in cognition. However, as most are written by either patient or neurologist, cognition is not often an area either is well-versed in. As a neuropsychologist, I am frequently called upon to articulate the problem to help the patient’s care team make decisions about medical management, vocation, and treatments, including DBS. This subject is too complex for a single blog, but it is possible to provide at least an overview.

Continue Reading »

NOTE: Dr. Paul Short is neither an agent nor employee of ADPA or any of its affiliate organizations. The views expressed in this blog are the opinions of Dr. Short and do not represent the opinions or endorsement of APDA. The information contained on this site is for your general information only and is not intended as, or a substitution for, medical advice. You should also be aware that the information on this site may not reflect the most current medical developments, nor is it provided in the course of a physician - patient relationship. You should always consult your physician or other qualified healthcare provider or expert with any questions or concerns you may have regarding a health or medical condition. You should never disregard professional medical advice, or delay in seeking it, because of something you have read on this site.

About the Author

Paul Short, PhD

Dr. Paul Short, The Parkinson's Coach, provides Internet-based coaching to individuals and famlies challenged by Parkinson's disease and helps them develop personalized plans for coping with the disease.