Your Guide to Parkinson's Resources

American Bar Association

321 North Clark Street
Chicago, IL 60654
800-285-2221
http://www.americanbar.org/

Legal Guide for the Seriously Ill

The onset of a serious illness or injury can affect much more than a person’s health. Knowing what steps to take to get your financial and legal affairs in order is often vitally important not only to you, but to your loved ones.

This guide provides you information on several steps to consider if you face serious illness or injury.  Specifically, this guide explains “seven key steps” in short and simple terms and provides tips and resource links that will give you much more detailed information on topics such as.Patient Rights, Healthcare Decisions and Employment

Listed in: Budgeting & Planning, Basics, and Estate & Special Needs Planning
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Protected Tomorrows

103 Schelter Road
Lincolnshire, IL 60069
(847) 522-8086
http://www.protectedtomorrows.com

Protected Tomorrows is an advocacy firm that helps those with disabilities navigate their way through a comprehensive life planning process. Protected Tomorrows is able to provide individuals and families in developing special needs care plans. The organization's areas of expertise include: education planning, residential care planning, financial and legal issues, and application for employment and government benefits including SSDI and / or SSI. Fees are individually assessed depending on the complexity of the case and services requested.
Listed in: Budgeting & Planning and Estate & Special Needs Planning
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Pine Tree Legal Assistance provides a state-by-state listing of local agencies offering low cost, or free, legal assistance to eligible clients. Many listed organizations are subject to restrictions about the types of cases they represent, so it is best to contact them with your circumstances to see if you meet the requirements for assistance.
Listed in: Mediation & Divorce and Estate & Special Needs Planning
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National Academy of Elder Law Attorneys (NAELA)

1577 Spring Hill Road, Suite 220
Vienna, VA 22182
(703) 942-5711
http://www.naela.org

The National Academy of Elder lay Attorneys is a not-for-profit association that represents lawyers and bar organizations. NAELA provides education, information and networking assistance to those who provide legal services to older adults and other special needs populations including people with disabilities. Visit the site's "Locate an Elder Law Attorney," to find someone in your area who is able to your specific legal and planning needs.
Listed in: Estate & Special Needs Planning
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Mediate.com

P.O. Box 51090
Eugene, OR 97405
(541) 345-1629
http://www.mediate.com

Mediate.com serves as a bridge between professionals offering mediation services and people considering mediation services. Services offered include divorce, employment, and estate planning, among other subjects. You can search for a mediator by state or topic on this Web site.
Listed in: Mediation & Divorce, Disclosure & Accommodation, and Estate & Special Needs Planning
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This Web site provides detailed information about disability, financial, and legal planning. In addition to articles, the site includes audio and video clips as well as sample forms addressing a wide range of legal matters such powers of attorney, living wills, and marriage settlement. There is specific information to the modification of estate planning documents for people with Parkinson's under the "Chronic Illness Planning" heading.
Listed in: Mediation & Divorce and Estate & Special Needs Planning
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Financial Planning Association

4100 E. Mississippi Avenue, Suite 400
Denver, CO 80246
(800) 322-4237
http://www.fpaforfinancialplanning.org

The Financial Planning Association Web site provides a wide variety of resources (articles, worksheets, guides, webinars, etc.) designed to help individuals understand the importance of financial planning and the value of obtaining sound advice from a financial planning professional. Special sections related to saving for college, estate planning, and long-term care for loved ones are also provided.
Listed in: Budgeting & Planning and Estate & Special Needs Planning
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Family Caregiver Alliance (FCA)

180 Montgomery Street, Suite 1100
San Francisco, CA 94104
(800) 445-8106
http://www.caregiver.org

The Family Caregiver Alliance was the first community-based non-profit organization in the country to address the needs of families and friends providing long-term care at home. The FCA now provides programs at national, state, and local levels to sustain caregivers. They provide information on various caregiving issues, including legal matters and various health conditions.
Listed in: For Family & Friends and Estate & Special Needs Planning
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American Association of Retired Persons (AARP)

601 E Street NW
Washington, DC 20049
(888) 687-2277
http://www.aarp.org

The AARP Web site offers visitors information about a wide range of topics including: health, money, work, insurance, and relationships. Although geared toward a 50+ audience, much of the content is relevant to younger people, especially those who are interested in healthy living and planning for the future. By using a keyword such as "Parkinson's" or "disability," site visitors may obtain a more target list of articles on a particular subject.
Listed in: COBRA and Estate & Special Needs Planning
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Allsup

300 Allsup Place
Belleville, IL 62223
(800) 854-1418
http://www.allsup.com

Allsup is a disability representation firm that provides assistance in filing for Social Security Disability Insurance (SSDI). Allsup also provides financial guidance and help with tax planning, managing healthcare costs and selecting Medicare options, in addition to offering many money management and planning calculators.

Listed in: Disability, Budgeting & Planning, Bankruptcy, and Estate & Special Needs Planning

4 Comments

That addesrses several of my concerns actually.

Anjii, Jun 23, 2011

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I was really counfsed, and this answered all my questions.

Jetsyn, Jun 23, 2011

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Yes, very helpful!

Bryan, Feb 26, 2013

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Being that most www visitors are diagnosed "Young-Onset" persons-I strongly encourage you to enroll in Long Term Disability and add "Buy-up" coverage through your employer. There is 'currently' a pre-existing clause that; if the wrong administration is in power, this clause may be overruled.
Best of luck to you all.

David, Sep 7, 2013

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Find Local Assistance

Your local Information and Referral Center Coordinator can provide you with referrals and make sure you know about the educational and support activities available in your community. 

Your Stories

Paola2

Paola Diagnosed at 15

I understand my Parkinson's is considered Juvenile Parkinsonism

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