Your Guide to Parkinson's Resources

The financial ramifications of a denied disability claim can be overwhelming. Without a way to generate an income, disability applicants who do not plan properly may face a serious financial crisis before the appeal process can be completed. If you plan on applying for Social Security Disability benefits, it is important that you plan ahead to prevent undue financial stress should you need to wait months or years while pursuing your claim through the SSA's Social Security Disability appeal process.  Be sure to also check out the Disability Resources page.

Listed in: Disability and Budgeting & Planning
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The Social Security and Disability Resource Center website (SSDRC.com) provides a detailed overview of how the federal disability system works (social security disability and SSI) and also provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration.

Listed in: Disability

1 Comment

I'd like to nominate this resource as addition to this guide. This website provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration. Hopefully, the information will be helpful to some of your site's visitors.

Tracy@VirginiaWebMedia.com, Jun 6, 2011

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Written by the National MS Society for people living with MS, this guidebook was developed to assist people in deciding whether applying for disability benefits is right for them and, if so, to help them navigate the complex application process. While some aspects of the application and application process will, of course, be different for those with PD, but much of the information in this guidebook is relevant and helpful regardless of diagnosis.

Listed in: Disability

2 Comments

Is there a guidebook for those with Parkinsons. Is parkinsons typically covered under disability?

Shelly, Aug 22, 2012

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Hi Shelly,

There is not an SSDI Guidebook specific to Parkinson's Disease that we are aware of. There are many PD patients who receive SSDI benefits, but each case is different, and not all cases are approved. For more on this topic, be sure to visit the section on our website about SSDI: http://www.youngparkinsons.org/what-you-should-know/disability/applying-for-disability

APDA Young Onset Center , Aug 22, 2012

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This is the official Web site for the Social Security Administration and it contains a wealth of information about Social Security Disability Insurance including eligibility, disability application guidelines, denial and the reapplication process. The site provides answers to frequently asked questions about the SSDI application process in general as well as addressing Medicare and Medicaid eligibility. Disabled people can also access a listing of Vocational Rehabilitation agencies that provide career retraining which may facilitate a return to work.
Listed in: Options for the Uninsured, Job Transitions, and Disability
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Parkinson's Action Network (PAN)

1025 Vermont Avenue, Suite 1120
Washington, DC 20005
(800) 850-4726
http://www.parkinsonsaction.org

PAN is the voice of the Parkinson's community on numerous public policy issues affecting research and an improved quality of life. Visit this Web site for updates on PD-related legislation of importance to various groups, including people with Parkinson's pursuing disability benefits and veterans with Agent Orange exposure.
Listed in: Disability and For Veterans
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National Organization of Social Security Claimants' Representatives

500 Sylvan Avenue
Englewood Cliffs, NJ 07632
(800) 431-2804
http://www.nosscr.org

The National Organization of Social Security Claimants' Representatives is an association of attorneys and other advocates who represent Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) claimants. They have a referral service for finding an attorney experienced in SSDI claims in your area.
Listed in: Disability
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Founder Jacques Chambers, CLU shares his in-depth knowledge of insurance, employee benefits, Social Security and Medicare with those who visit this Web site. Jacques practical is able to explain complicated topics in clear, understandable terms by breaking seemingly overwhelming tasks into smaller, easy-to-follow steps.
Listed in: Disability
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Allsup

300 Allsup Place
Belleville, IL 62223
(800) 854-1418
http://www.allsup.com

Allsup is a disability representation firm that provides assistance in filing for Social Security Disability Insurance (SSDI). Allsup also provides financial guidance and help with tax planning, managing healthcare costs and selecting Medicare options, in addition to offering many money management and planning calculators.

Listed in: Disability, Budgeting & Planning, Bankruptcy, and Estate & Special Needs Planning

4 Comments

That addesrses several of my concerns actually.

Anjii, Jun 23, 2011

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I was really counfsed, and this answered all my questions.

Jetsyn, Jun 23, 2011

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Yes, very helpful!

Bryan, Feb 26, 2013

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Being that most www visitors are diagnosed "Young-Onset" persons-I strongly encourage you to enroll in Long Term Disability and add "Buy-up" coverage through your employer. There is 'currently' a pre-existing clause that; if the wrong administration is in power, this clause may be overruled.
Best of luck to you all.

David, Sep 7, 2013

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