Next Step In Care provides user-friendly guides and checklists for Caregivers and Healthcare Provides on topics such as Becoming a Family Caregiver, Hospital Stay and Discharge Planning Options, Rehabilitation and Home Care. They also provide links to other available resources, a terms and definitions page for common medical terminology, and helpful articles.
Your Guide to Parkinson's Resources
UCTV
9500 Gilman Drive, M/C 0176T
La Jolla, CA 92093-0176
800-742-5117
http://www.uctv.tv/search-moreresults.aspx?keyword=parkinson%27s
UCTV offers the public an extensive library of video presentations on Parkinson's disease from leading physicians. Use the keyword search function to find programs on PD-related topics such as: brain function, genetics, dietary/nutritional supplements, physical therapy, pscyhotherapy and more.
USA.gov
USA.gov, Office of Citizen Services 1275 First Street, NE
Washington, DC 20417
800-333-4636
http://www.usa.gov/Citizen/Topics/Health.shtml
Find an A-Z list of health topics and resources on insurance, prescription drugs, nutrition, caregiving, and more on this government Web site.
National Caregivers Library
901 Moorefield Park Drive Suite 100
Richmond , VA 23236
804-327-1111
http://www.caregiverslibrary.org/caregivers-resources/grp-checklists-forms.aspx
This library consists of hundreds of useful articles, forms, checklists and links to resources. It is organized into logical categories that address the key needs of caregivers and their loved ones. The library also includes an entire section for employers.
American Medical Association: Caregiver Self- Assessment
515 N. State Street
Chicago, IL 60654
(800) 621-8335
http://www.ama-assn.org/ama/pub/physician-resources/public-health/promoting-healthy-lifestyles/geriatric-health/caregiver-health/caregiver-self-assessment.page
The Caregiver Health Self-assessment Questionnaire will help caregivers analyze their own behavior and health risks and, with their physician's help, make decisions that will benefit both the caregiver and the patient. The Caregiver Self-assessment Questionnaire will enable physicians to identify and provide preventive services to an at-risk but hidden population and improve communication and enhance the physician-family caregiver health partnership.
Dept. of Veterans Affairs: Caregiver Services
1-855-260-3274
http://www.caregiver.va.gov/support_services.asp
You may know that VA provides benefits and services for Veterans, but did you know that VA also has a number of services designed specifically to support you in your role as a Family Caregiver? VA values your commitment as a partner in our pledge to care for those who have "borne the battle," and we have several support and service options designed with you in mind. The programs are available both in and out of your home to help you care for the Veteran you love and for yourself.
The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.
The Caregivers’ Monday Resource Kit
http://www.mondaycampaigns.org/images/photos/caregivers_kit-5.10.12.pdf
Many times caregivers feel isolated and overwhelmed, and end up neglecting their own health and needs. That’s why The Monday Campaigns has created Caregivers’ Monday, an initiative that will find and assemble the latest tips, news and key resources to help caregivers take good care of themselves, manage stress and find support. It is our hope that Caregivers’ Monday will remind these hardworking individuals that, at least on Mondays, they should take some time out for themselves.
Caring From a Distance
4125 Albemarle St. NW
Washington, DC 20016
202-895-9465
http://www.cfad.org/index.cfm
Caring From a Distance provides resources for those who are caring for aging parents or loved ones located in different cities or states.
National Family Caregiver Association
10400 Connecticut Avenue Suite 500
Kensington, MD 20895-3944
1-800-896-3650
http://www.thefamilycaregiver.org/
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
Well Spouse Association
63 W. Main Street, Suite H
Freehold, NJ 07728
(800) 838-0879
http://www.wellspouse.org
The National Healthy Marriage Resource Center
301 NW 63rd Street - Suite 600
Oklahoma City, OK 73116
(866) 916-4672
http://healthymarriageinfo.org/
Stanford Patient Education Research Center
1000 Welch Road, Suite 204
Palo Alto, CA 94304
(650) 723-7935
http://patienteducation.stanford.edu/programs/cdsmp.html
Lutheran Family Services
700 Light Street
Baltimore, MD 21230
http://www.lutheranservices.org
Lotsa Helping Hands
2 Clock Tower Place, Suite 610
Maynard, MA 01754
http://apda.lotsahelpinghands.com/caregiving/home/
Faith in Action Network
(866) 839-8865
http://www.fianationalnetwork.org
Family Caregiver Alliance (FCA)
180 Montgomery Street, Suite 1100
San Francisco, CA 94104
(800) 445-8106
http://www.caregiver.org
Chapel Hill Training-Outreach Project, Inc.
800 Eastowne Drive, Suite 105
Chapel Hill, NC 27514
http://chtop.org/
Caregiver-to-Caregiver Program / American Parkinson's Disease Association
25 N. Winfield Road
Winfield, IL 60190
(877) 223-3801
http://www.youngparkinsons.org
Case Management Society of America
6301 Ranch Drive
Little Rock, AR 72223
(501) 221-9068
http://www.cmsa.org
Area Agencies on Aging
(800) 677-1116
http://www.eldercare.gov
1 Comment
This is way more hpelufl than anything else I've looked at.
Laticia, Oct 22, 2011