Your Guide to Parkinson's Resources

The VitalStim® Therapy System is a safe and effective treatment for patients suffering with difficulty swallowing or dysphagia. Often times, insurance and Medicare will cover all or part of the cost for the treatment of swallowing dysfunction provided the treatment is medically necessary and delivered by a qualified professional. Visit their website to learn more about the treatment or find a qualified professional near you.

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I was diagnosed at approximately between the ages of 25-30 with young onset PD. I am now 58 yrs old and have had the DBS for 10 yrs which has been the best operation I have had for symptom control. However,along with the PD itself, the DBS tends to worsen speech problems. Having the VitalStim has been an enormous help to me.

VitalStim therapy is strengthening my swallowing muscles so that I do not aspirate anything into my lungs while eating or drinking if I should choke. Electrodes are placed on the throat to stimulate the throat muscles. The wires from the electrodes are attached to the small unit which provides low voltage stimulation.

Andrew, Oct 10, 2012

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UCTV

9500 Gilman Drive, M/C 0176T
La Jolla, CA 92093-0176
800-742-5117
http://www.uctv.tv/search-moreresults.aspx?keyword=parkinson%27s

UCTV offers the public an extensive library of video presentations on Parkinson's disease from leading physicians. Use the keyword search function to find programs on PD-related topics such as: brain function, genetics, dietary/nutritional supplements, physical therapy, pscyhotherapy and more.

Listed in: Physicians & Clinics, Other Healthcare Providers, Counseling/Therapy, Complementary and Alternative Medicine, Supplements, and For Family & Friends
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USA.gov

USA.gov, Office of Citizen Services 1275 First Street, NE
Washington, DC 20417
800-333-4636
http://www.usa.gov/Citizen/Topics/Health.shtml

Find an A-Z list of health topics and resources on insurance, prescription drugs, nutrition, caregiving, and more on this government Web site.

Listed in: Physicians & Clinics, Other Healthcare Providers, Prescriptions, Supplements, COBRA, Options for the Uninsured, and For Family & Friends
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Lee Silverman Voice Treatment (LSVT)®

6890 E. Sunrise Drive, Suite 120 241
Tucson, AZ 85750
(888) 438-5788
http://www.lsvtglobal.com

The LSVT ® LOUD and LSVT® BIG are intensive behavioral treatment programs developed specifically for people with Parkinson's disease. One of the major goals of LSVT® LOUD is improving vocal loudness, but often, improvements in speech clarity and breathing result. LSVT® BIG focuses on retraining limb movements to improve speed and balance. This Web site can be used to find providers certified in this program as well as FREE informational lectures scheduled around the country.
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LSVT (Lee Silverman Voice Treatment)is retraining the voice through exercises which emphasize LOUDNESS control. By speaking LOUDLY my speech is slowed down to the point of becoming more understandable. I am currently taking a modified version of the LSVT and it has been an enormous help to me.

Andrew , Oct 10, 2012

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Ellis Neurological Voice Treatment Foundation

P. O. Box 642
Louisville, CO 80027
(303) 604-3280

The Ellis Neurological Voice Treatment Foundation is committed to the education about and treatment of neurological speech and voice disorders. This foundation maintains a directory of certified SLPs trained in the Lee Silverman Voice Treatment for Parkinson's disease.
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This is the first national Rehabilitation Resource Center offers callers the opportunity to speak with a licensed physical therapist who can answer questions about exercise, provide information about PD-specific programs or providers in your area, and provide educational materials. This resource may also be utilized by healthcare professionals to address specific questions about managing Parkinson's disease symptoms through exercise and rehabilitation interventions.
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American Speech-Language and Hearing Association (ASHA)

10801 Rockville Pike
Rockville, MD 20852
(800) 638-8255
http://www.asha.org

ASHA maintains a resource guide suggesting ways of paying for speech therapy services if your insurance company does not offer coverage. You may also use this Web site to find a Speech-language pathologist (SLP) in your area.
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American Physical Therapy Association (APTA)

1111 North Fairfax Street
Alexandria, VA 22314
(800) 999-2782
http://www.apta.org

A physical therapist can help you achieve and maintain mobility and quality of life. The APTA Web site has a link to help you locate a physical therapist in your area. You will want to contact each professional and find out if they have any specialized training or experience in working with people with Parkinson's disease.
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Find Local Assistance

Your local Information and Referral Center Coordinator can provide you with referrals and make sure you know about the educational and support activities available in your community. 

Your Stories

Peter Dunlap

Peter Diagnosed at 43

Parkinson's disease caught up with me in 2002, when I was 43. Shortly...

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