Your Guide to Parkinson's Resources

The financial ramifications of a denied disability claim can be overwhelming. Without a way to generate an income, disability applicants who do not plan properly may face a serious financial crisis before the appeal process can be completed. If you plan on applying for Social Security Disability benefits, it is important that you plan ahead to prevent undue financial stress should you need to wait months or years while pursuing your claim through the SSA's Social Security Disability appeal process.  Be sure to also check out the Disability Resources page.

Listed in: Disability and Budgeting & Planning

The Social Security and Disability Resource Center website (SSDRC.com) provides a detailed overview of how the federal disability system works (social security disability and SSI) and also provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration.

Listed in: Disability

Written by the National MS Society for people living with MS, this guidebook was developed to assist people in deciding whether applying for disability benefits is right for them and, if so, to help them navigate the complex application process. While some aspects of the application and application process will, of course, be different for those with PD, but much of the information in this guidebook is relevant and helpful regardless of diagnosis.

Listed in: Disability
This is the official Web site for the Social Security Administration and it contains a wealth of information about Social Security Disability Insurance including eligibility, disability application guidelines, denial and the reapplication process. The site provides answers to frequently asked questions about the SSDI application process in general as well as addressing Medicare and Medicaid eligibility. Disabled people can also access a listing of Vocational Rehabilitation agencies that provide career retraining which may facilitate a return to work.
Listed in: Options for the Uninsured, Job Transitions, and Disability

Parkinson's Action Network (PAN)

1025 Vermont Avenue, Suite 1120
Washington, DC 20005
(800) 850-4726
http://www.parkinsonsaction.org

PAN is the voice of the Parkinson's community on numerous public policy issues affecting research and an improved quality of life. Visit this Web site for updates on PD-related legislation of importance to various groups, including people with Parkinson's pursuing disability benefits and veterans with Agent Orange exposure.
Listed in: Disability and For Veterans

National Organization of Social Security Claimants' Representatives

500 Sylvan Avenue
Englewood Cliffs, NJ 07632
(800) 431-2804
http://www.nosscr.org

The National Organization of Social Security Claimants' Representatives is an association of attorneys and other advocates who represent Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) claimants. They have a referral service for finding an attorney experienced in SSDI claims in your area.
Listed in: Disability
Founder Jacques Chambers, CLU shares his in-depth knowledge of insurance, employee benefits, Social Security and Medicare with those who visit this Web site. Jacques practical is able to explain complicated topics in clear, understandable terms by breaking seemingly overwhelming tasks into smaller, easy-to-follow steps.
Listed in: Disability

Allsup

300 Allsup Place
Belleville, IL 62223
(800) 854-1418
http://www.allsup.com

Allsup is a disability representation firm that provides assistance in filing for Social Security Disability Insurance (SSDI). Allsup also provides financial guidance and help with tax planning, managing healthcare costs and selecting Medicare options, in addition to offering many money management and planning calculators.

Listed in: Disability, Budgeting & Planning, Bankruptcy, and Estate & Special Needs Planning

Find Local Assistance

Your local Information and Referral Center Coordinator can provide you with referrals and make sure you know about the educational and support activities available in your community. 

Your Stories

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Francis Diagnosed at 49

Diagnosed 7 years ago, aged 49, I qualify as a "young onset" Parkinso...

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