Caring From a Distance provides resources for those who are caring for aging parents or loved ones located in different cities or states.
Listed in: For Family & Friends
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
Listed in: For Family & Friends
Well Spouse advocates for and addresses the needs of individuals caring for a chronically ill or disabled spouse/partner. They offer peer to peer support and educate healthcare professionals and the general public about the special challenges and issues "well" spouses face every day. Visitors to this Web site can search for a local support group as well as find links to other caregiving resources.
Listed in: For Family & Friends
Funded by the Department of Health & Human Services, this organization provides information about and resources for maintaining a healthy marriage/relationship. Search the site for keywords: "chronic illness," for specific articles and resources related to the emotional and financial strain a partner's illness can have on a relationship.
Listed in: Mediation & Divorce and For Family & Friends
Stanford University School of Medicine
Developed by Stanford University, this six-week chronic disease stress-management program helps those living with a chronic illness manage all aspects of their treatment. This program is held in community settings (churches, libraries, hospitals, etc.) and is facilitated by two trained leaders. See "Organizations Offering Our Programs" to find a program near you or visit the "Training" section to bring the program to your organization.
Listed in: Case Management Services and For Family & Friends
APDA has joined with Lotsa Helping Hands, a Web-based caregiver support service, to offer friends and family members an easy way of staying informed and coordinating care. Create a personalized on line Web page and keep track of who may be able to lend a hand and how.
Listed in: For Family & Friends
Lutheran Family Services is a national not-for-profit organization providing community development, housing, disability, case management, and mental health services. Counseling services for individuals, couples, children and families are frequently available on a sliding fee scale based on ability to pay. Visit their Web site to find out which programs and services are offered by the locations near you.
Listed in: Counseling/Therapy, Case Management Services, and For Family & Friends
The Family Caregiver Alliance was the first community-based non-profit organization in the country to address the needs of families and friends providing long-term care at home. The FCA now provides programs at national, state, and local levels to sustain caregivers. They provide information on various caregiving issues, including legal matters and various health conditions.
Listed in: For Family & Friends and Estate & Special Needs Planning
Faith in Action is a network of interfaith volunteers helping to provide care in nearly every community. Services range from transportation to bill paying to respite care. Visitors to this Web site can search for services available in their state / city / county.
Listed in: For Family & Friends
Chapel Hill's mission is to develop, demonstrate, and deliver programs that enhance the lives of families living with a chronic illness. This Web site has a Respite Locator Service where families can search for respite programs offered in their state.
Listed in: For Family & Friends
The APDA National Young Onset Center was created to provide information, education, and support specifically for people with young onset PD, their family members, friends, and healthcare providers. Through the Caregiver-to-Caregiver program, family members of people with Parkinson's can get connected to others that share similar interests and concerns.
Listed in: For Family & Friends
This national association of case management professionals offers "Consumer" information about why and when a case manager could be used to coordinate care and services.
Listed in: Case Management Services and For Family & Friends
Many organizations and professionals providing programs and services to the elderly also assist younger people with disabilities. The Eldercare Locater, a public service of the US Administration on Aging, can help you find agencies by ZIP code that are providing community-based services such as case management, benefits advocacy, transportation, home care, etc. The area Agencies on Aging coordinate these services and, in some cases, are able to offer them at no cost or at a reduced cost.
Listed in: Case Management Services, Transportation Assistance, and For Family & Friends