Stories

Michael.R

One Day at a Time

Diagnosed at 41

Over the course of a few years, I started to realize that I was falling into walls, had problems swallowing and smelling, and started to develop on-going tremors on my left side (mostly in my left hand). After going through numerous neurologists (one of whom told me I needed to drink more alcohol ;) ), I found a great doctor who immediately diagnosed me properly and started me on a medicine regiment that almost immediately started to have a positive impact on me (after the 'getting-used-to-them' period wore off).


I believe that finding out you have a neuro-degenerative disease that won’t get any better would cause anyone to re-think and evaluate their priorities; it certainly did me. I found myself almost immediately re-prioritizing how I took care of those around me and myself. What essentially changed was what I allowed to occupy my thinking and how I spent my time. The daily, seemingly mundane tasks of getting kids ready for school, helping with homework and how I communicated feelings to those around me was ratcheted up considerably.

Michael Richardson Climb


It can certainly be overwhelming to try to understand this type of diagnosis (and the ramifications of it) and I have learned a lot about myself through this process. I have found that surrounding myself with positive, uplifting people has allowed me to continue working as a Technology and Business Consultant and provided me with a new lease on life.


I am now 43 and my approach is just to take one day at a time. It’s a cliché, but it truly has helped me.

1 Comment

I've felt the symptoms for a few years as they gradually worsen. Mental fog, aches and pains, and tremors. A rather unique set of physical detractions and stiffening. I work as a painter, outdoors, and in variable tasks in construction in general.
The shakes came and went, but these are worse now, as is thinking clearly and the memory loss. I keep a notebook around to remind myself of chores and other things to do, but those reminders can be forgotten into the void at anytime of the day or night. It's not a pleasant feeling.
Even the bedroom can become a painful, tedious action.

When eating, stuff gets stuck in my throat and the choking starts. The worst part is that one's life starts to recede, and the man who once was vibrant, recedes into a shell when they cannot think or act clearly. It's sort of like a live-action death

Charlie Michael, Aug 15, 2014

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