DIAGNOSIS: STEP BY STEP
Diagnosed at 27
Things in life couldn’t be better! My husband worked at GM, I have 4 beautiful kids and a nice home. Yup, content and happy!
Then, in the Summer of 2007 we went camping on an 11-day adventure. I had just developed a small tremor in my right hand and a twitch in my eyelid. At the time, we took it as stress and thought nothing else of it, but I started to walk strange. My neck was so stiff, and the tremor was already starting on my right side. So I went to my doctor. He said you have Essential Tremor and put me on medication. I was at the highest dose of the medication, was pale, almost grey, and couldn’t do a thing but lay on the couch. The next step was to a local neurologist who said I was causing the shaking and it was all in my head. Then to the shrink that didn’t help. About a year passed, and I saw a Movement Disorders Specialist, and I was diagnosed with YOPD at 27. Now I am 31 and and my husband has been my caretaker. I have mobility issues: tremors, speech (mumbling). Thankfully, my family gives us great support. Parkinson’s can be really lonely. If you wanna talk or if I can try to answer some questions, write me at nicole.l.silver@gmail.com. I look forward to talking with you.
4 Comments
Sending positive prayers your way. Glad to hear that you have a great support system to assist you.
Debbie Fourcand, Dec 1, 2012
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Im 34 diagnosed at 31. my email is marciabruchmann@yahoo.com
I would email you know but Im curently at a work computer
marcia, Dec 22, 2012
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Nicole,
The greatest step you've taken since your diagnosis was to communicate with your peers. We are on a journey together- join a support group and talk about "the way having PD makes you feel" with your husband annd kids. PD hasn't changed who you are. VERY important to stay public and not to slip into a "why me" state.
It's NOT fair to be diagnosed with any disease but stay optimistic and involved. None of us did anything to deserve this fate but we hcan't lie down. I recommend Michael J.'s Roundtable event(s). Michael is a very humble real guy. His staff are all very courteous and generous with their time. Information is your friend. Keep the faith..smile especially when you don't want to. :)
D.-
David Dorsey, Feb 12, 2013
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TRULY AMAZING TESTIMONY..BEST TO YOU AND YOUR CAREGIVER NETWORK.
JAMES SHOWERS JR, Jun 9, 2013
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