What You Should Know

If you are young and have Parkinson's disease, you and your family are likely to have numerous questions.  How will Parkinson's affect you and those you care about, and how might you have an impact on it?


We are here to provide you with the education and support you need in order to make important decisions about your health and your life.  This section was created with many of the most frequently asked questions in mind with a goal of helping you be informed, live well and stay strong. While we encourage you to be your own advocate by researching options and planning ahead, know that you are not alone. If you or your family member has a particular question or issue that is not addressed here, please let us know.

Our mission is to ease the burden and find the cure for those with Parkinson's disease and their families. We encourage you to contact us directly any time and welcome the opportunity to provide you with additional assistance. We also invite you to visit this website frequently, as we regularly post new articles and information.

About Symptoms

Tremor, rigidity and stiffness are some of the well-known features of PD, but there are many other symptoms frequently associated with the disease including depression and sleep disorders as well as changes in memory and behavior.

Treatment

Learn about the different (and newest) treatment options including medication, surgery, physical medicine, complementary and alternative medicine.

Maintaining Your Health

Putting together a team to guide and support you, exercising, eating right and managing stress are some of the keys to living well with young onset Parkinson's disease.

Maintaining Your Relationships

Understand the impact chronic illness can have on relationships with your friends, partner/spouse, children and family members and how to manage it.

Maintaining Your Employment

Explore career issues, if and when you should tell your employer of your diagnosis, and arrangements your employer may be required to make on your behalf.

Insurance

Discover the different types of insurance, your options after diagnosis, government plans as well as options for the uninsured.

Disability

Educate yourself about the application process for Social Security Disability Income (SSDI) and how to qualify for Medicare.

Financial & Legal 

Consider some of the most important planning issues including budgeting, estate planning, powers of attorney, living wills and guardianship.

Research

Find out what scientists are discovering about new and better treatment options, genetics and genetic testing, and get involved yourself by participating in clinical trials, increasing awareness of PD/YOPD, and raising funds for a cure.

Advocacy

Get involved! Find out how you can serve as an advocate for PD by using your voice, volunteering your time or supporting and encouraging those in the PD community.

Register With Us

Sign up today to receive our newsletter, download free APDA publications, and gain access to our Person-to-Person and Caregiver-to-Caregiver support programs!

I&R Center

Find more resources at the local level by contacting the APDA Information and Referral (I&R) Center closest to you to.

Also learn about upcoming educational and support programs in your area.

Your Stories

John1

John Diagnosed at 44

I walked out of the doctor’s office after a 7 minute exam with “you h...

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